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Tetraplegia Total or partial impairment of the sensory and motor functions of the body including all four limbs. The person looses control over bowel and bladder functions, posture and even in few cases respiratory functioning.
Spinal cord injury (SCI), from impact to rehabilitation is a family affair. The family can be the single most important resource in dealing with a devastating trauma, and as such, plays a central and crucial role in the social and emotional stabilization of someone with SCI.
The sudden impact of SCI places overwhelming stress on the family, which has had no time to prepare. It can throw off the balance of even the strongest families. At the time of injury, the family enters into an interdependent partnership with the injured person and becomes an integral and contributing part of the clinical team. The family provides support and empathy.. The family passes through stages to re-establish its balance after trauma. During the acute stage, the family is overwhelmed, fearful, confused, out of control, powerless, and numb. The family needs clear and accurate information because, in most situations, the family has not had a previous experience with a catastrophic injury; it has no reference points to build from and must rely on strangers speaking in medical terminology. During the adjustment or rehabilitation stage, the family actively works with the family member and the rehab team to become educated about SCI. The family members become learners and teachers, coaches and boosters to the survivor as he or she struggles to rebuild a life.
Problems facing the SCI Caregiver
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It is important to understand that the concerns and problems of the individual with SCI and the concerns and problems of the caregiver usually are not the same. Results from a recent research project show that caregivers see their problems as
1. the negative attitude of the person with SCI;
. caregivers feelings of guilt;
. lack of appreciation for the caregiver;
4. not enough time to do their own activities;
5. having to say no to the person with SCI; and
6. feeling overwhelmed.
What the caregivers saw as problems mainly focused on the patient and what the caregiver had to manage.
On the other hand the concerns of individuals with SCI were related to
1. wanting to walk again;
. their lack of sexual function;
. pain;
4. bowel and bladder function;
5. lack of money;
6. not being able to do simple tasks; and
7. being anxious.
Their problems were more self-oriented.
When individuals are aggravated and frustrated in the pursuit of their goals or routine activities, they are more apt to act in a hostile manner. The caregiver is often the person who is there and becomes the target of their hostility.
Tetraplegia Total or partial impairment of the sensory and motor functions of the body including all four limbs. The person looses control over bowel and bladder functions, posture and even in few cases respiratory functioning.
Spinal cord injury (SCI), from impact to rehabilitation is a family affair. The family can be the single most important resource in dealing with a devastating trauma, and as such, plays a central and crucial role in the social and emotional stabilization of someone with SCI.
The sudden impact of SCI places overwhelming stress on the family, which has had no time to prepare. It can throw off the balance of even the strongest families. At the time of injury, the family enters into an interdependent partnership with the injured person and becomes an integral and contributing part of the clinical team. The family provides support and empathy.. The family passes through stages to re-establish its balance after trauma. During the acute stage, the family is overwhelmed, fearful, confused, out of control, powerless, and numb. The family needs clear and accurate information because, in most situations, the family has not had a previous experience with a catastrophic injury; it has no reference points to build from and must rely on strangers speaking in medical terminology. During the adjustment or rehabilitation stage, the family actively works with the family member and the rehab team to become educated about SCI. The family members become learners and teachers, coaches and boosters to the survivor as he or she struggles to rebuild a life.
Problems facing the SCI Caregiver
It is important to understand that the concerns and problems of the individual with SCI and the concerns and problems of the caregiver usually are not the same. Results from a recent research project show that caregivers see their problems as
1. the negative attitude of the person with SCI;
. caregivers feelings of guilt;
. lack of appreciation for the caregiver;
4. not enough time to do their own activities;
5. having to say no to the person with SCI; and
6. feeling overwhelmed.
What the caregivers saw as problems mainly focused on the patient and what the caregiver had to manage.
On the other hand the concerns of individuals with SCI were related to
1. wanting to walk again;
. their lack of sexual function;
. pain;
4. bowel and bladder function;
5. lack of money;
6. not being able to do simple tasks; and
7. being anxious.
Their problems were more self-oriented.
When individuals are aggravated and frustrated in the pursuit of their goals or routine activities, they are more apt to act in a hostile manner. The caregiver is often the person who is there and becomes the target of their hostility.
Tetraplegia Total or partial impairment of the sensory and motor functions of the body including all four limbs. The person looses control over bowel and bladder functions, posture and even in few cases respiratory functioning.
Spinal cord injury (SCI), from impact to rehabilitation is a family affair. The family can be the single most important resource in dealing with a devastating trauma, and as such, plays a central and crucial role in the social and emotional stabilization of someone with SCI.
The sudden impact of SCI places overwhelming stress on the family, which has had no time to prepare. It can throw off the balance of even the strongest families. At the time of injury, the family enters into an interdependent partnership with the injured person and becomes an integral and contributing part of the clinical team. The family provides support and empathy.. The family passes through stages to re-establish its balance after trauma. During the acute stage, the family is overwhelmed, fearful, confused, out of control, powerless, and numb. The family needs clear and accurate information because, in most situations, the family has not had a previous experience with a catastrophic injury; it has no reference points to build from and must rely on strangers speaking in medical terminology. During the adjustment or rehabilitation stage, the family actively works with the family member and the rehab team to become educated about SCI. The family members become learners and teachers, coaches and boosters to the survivor as he or she struggles to rebuild a life.
Problems facing the SCI Caregiver
It is important to understand that the concerns and problems of the individual with SCI and the concerns and problems of the caregiver usually are not the same. Results from a recent research project show that caregivers see their problems as
1. the negative attitude of the person with SCI;
. caregivers feelings of guilt;
. lack of appreciation for the caregiver;
4. not enough time to do their own activities;
5. having to say no to the person with SCI; and
6. feeling overwhelmed.
What the caregivers saw as problems mainly focused on the patient and what the caregiver had to manage.
On the other hand the concerns of individuals with SCI were related to
1. wanting to walk again;
. their lack of sexual function;
. pain;
4. bowel and bladder function;
5. lack of money;
6. not being able to do simple tasks; and
7. being anxious.
Their problems were more self-oriented.
When individuals are aggravated and frustrated in the pursuit of their goals or routine activities, they are more apt to act in a hostile manner. The caregiver is often the person who is there and becomes the target of their hostility.
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